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ASHAM Analyse sociologique des habitudes de vie des adultes atteints de Dystrophie myotonique de type 1 ou maladie de Steinert: Rapport de recherche dans le cadre du premier appel à projets de recherche 2012 Sciences humaines et sociales et maladies rares

Abstract:

Living habits for individuals suffering from a debilitating chronic disease are poorly known, yet essential for effective nursing care to be delivered in the long term. Myotonic dystrophy type 1 (DM1 or Steinert’s disease) is a particular chronic rare disease: it is genetic and progressive; it affects several functions and currently treatment for it is solely symptomatic. Amidst this complexity, it is relatively easy to cater for this clinical diversity in medical terms through multidisciplin...

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Publication status:
Published
Peer review status:
Peer reviewed

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Publication website:
https://halshs.archives-ouvertes.fr/halshs-01470373

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Institution:
University of Oxford
Division:
MSD
Department:
Nuffield Department of Population Health
Role:
Author
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Publisher:
Laboratoire Droit et Changement Social - UMR CNRS 6297, Université de Nantes Publisher's website
Place of publication:
Nantes
Publication date:
2016-09-01
Language:
French
Keywords:
Pubs id:
1180749
Local pid:
pubs:1180749
Deposit date:
2021-06-07

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